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Weird Baseball, My Health, and Dragon*Con
Sep. 26th, 2007 03:23 pmSo, I haven't written in a long time, mostly because I am still trying to adjust to a lot of changes in my life. But before I get into all of that, I give you Korean baseball fights, which I couldn't have shared without ![[livejournal.com profile]](https://www.dreamwidth.org/img/external/lj-userinfo.gif)
pig2k3 showing it to me first. :) May I suggest letting it compeltely load before trying to watch it.
Korean Baseball Fight... Seriously... WTF?
Now, onto the more important stuff. I have been back to my neurologist, and also my general practitioner since Dragon*Con and the really incredible news is that I don't have MS. I do however have Fibromyalgia (FS) and Chronic Fatigue/Immune Dysfunction Syndrome (CFIDS). As my GP put it, you can read yourself silly over both of these and not feel like you know any more than when you started, but basically my immune system has gone on holiday and my body has forgotten how to convert and store energy properly, and I have pretty constant pain of varying levels depending on the day. I am going through various meds at the moment in the attempt to get my symptoms under some sort of control, but so far, it's only been a moderate improvement.
This is mainly due to the fact that I have to learn to adjust everything that I feel makes me who I am. As long as I can remember, I have been constantly in motion of some sort, mentally or physically, and sometimes both simultaneously. I have been a working insomniac, in that when I couldn't sleep, I would work more, since I was a small child. And I guess, really, in retrospect, I should have realized something was seriously wrong when I started sleeping more than 10 hours a day, every day, without meds, and without wanting to argue that I didn't need the sleep.
For me to stop what I am working on and lay down and do nothing, even in the middle of something completely goes against every single grain in my body. And the really vexing thing is that it doesn't just apply to "work", even things I enjoy, like hanging out with my friends, or playing a video game, or even just reading a book all can fatigue you in one way or another. And because I want so very much to maintain some semblance of who I am, I still push myself too far. Sometimes I feel like if I could just go a few more minutes, then it would all be ok, but then when I do that, I wind up paying for it either by being in extreme physical pain, or being so fatigued I can't get out of bed for two days.
( As an example... )
It feels unnatural to me to have to rest so much, and limit myself so drastically in what I do. Though I realize it's something I am going to have to adjust to, right now it is making me very fussy.
To that end, I had a meeting with the Chairman of Dragon*Con yesterday. I really love Dragon*Con, but it was wearing me down before, I was just taking on too many things. After a long talk, it was agreed that I would stay on, doing the publication work (Progress Report, Program Book, Ads, etc.), and that I would remain the Senior Director of Public Relations (only 6 directors at the moment), but I would let go of all the other things I was doing for the show.
That means I will no longer be working on the guest selection committee, scheduling,astralfire's second for the tracks (he will be getting a new one for that and scheduling), the main website (other than biographies as needed for the various publications), nor will I be the "go to" person and liason for staff, directors (outside my own), bands, guests, or agents. What that means is that the days of everyone coming to Cassy to help solve their problems are over. I will be happy to point people to the correct director or senior director, but I won't be doing all the "leg work" I use to do.
In addition, I am picking up two "seconds",maitayne, who I will be teaching all of the publication work to, and eugie, who I will be training as my backup for my Senior Director duties. Having them as backups was a vital part of me agreeing to stay on at the convention. With them learning what I do, it means that if it becomes imparative for me to take a break, or lay down, I will be able to do so. Major thanks to both of them for agreeing to be my seconds!
And that's where I am, fussy that I am having to learn to cope with being ill, but happy that I finally will have help, and a very defined line of what I am and am not responsible for at the show. It is going to be a major learning experience for me, but I look forward to seeing where the next year takes me with all of these changes.
pig2k3 showing it to me first. :) May I suggest letting it compeltely load before trying to watch it. Korean Baseball Fight... Seriously... WTF?
Now, onto the more important stuff. I have been back to my neurologist, and also my general practitioner since Dragon*Con and the really incredible news is that I don't have MS. I do however have Fibromyalgia (FS) and Chronic Fatigue/Immune Dysfunction Syndrome (CFIDS). As my GP put it, you can read yourself silly over both of these and not feel like you know any more than when you started, but basically my immune system has gone on holiday and my body has forgotten how to convert and store energy properly, and I have pretty constant pain of varying levels depending on the day. I am going through various meds at the moment in the attempt to get my symptoms under some sort of control, but so far, it's only been a moderate improvement.
This is mainly due to the fact that I have to learn to adjust everything that I feel makes me who I am. As long as I can remember, I have been constantly in motion of some sort, mentally or physically, and sometimes both simultaneously. I have been a working insomniac, in that when I couldn't sleep, I would work more, since I was a small child. And I guess, really, in retrospect, I should have realized something was seriously wrong when I started sleeping more than 10 hours a day, every day, without meds, and without wanting to argue that I didn't need the sleep.
For me to stop what I am working on and lay down and do nothing, even in the middle of something completely goes against every single grain in my body. And the really vexing thing is that it doesn't just apply to "work", even things I enjoy, like hanging out with my friends, or playing a video game, or even just reading a book all can fatigue you in one way or another. And because I want so very much to maintain some semblance of who I am, I still push myself too far. Sometimes I feel like if I could just go a few more minutes, then it would all be ok, but then when I do that, I wind up paying for it either by being in extreme physical pain, or being so fatigued I can't get out of bed for two days.
( As an example... )
It feels unnatural to me to have to rest so much, and limit myself so drastically in what I do. Though I realize it's something I am going to have to adjust to, right now it is making me very fussy.
To that end, I had a meeting with the Chairman of Dragon*Con yesterday. I really love Dragon*Con, but it was wearing me down before, I was just taking on too many things. After a long talk, it was agreed that I would stay on, doing the publication work (Progress Report, Program Book, Ads, etc.), and that I would remain the Senior Director of Public Relations (only 6 directors at the moment), but I would let go of all the other things I was doing for the show.
That means I will no longer be working on the guest selection committee, scheduling,
astralfire's second for the tracks (he will be getting a new one for that and scheduling), the main website (other than biographies as needed for the various publications), nor will I be the "go to" person and liason for staff, directors (outside my own), bands, guests, or agents. What that means is that the days of everyone coming to Cassy to help solve their problems are over. I will be happy to point people to the correct director or senior director, but I won't be doing all the "leg work" I use to do.In addition, I am picking up two "seconds",
maitayne, who I will be teaching all of the publication work to, and eugie, who I will be training as my backup for my Senior Director duties. Having them as backups was a vital part of me agreeing to stay on at the convention. With them learning what I do, it means that if it becomes imparative for me to take a break, or lay down, I will be able to do so. Major thanks to both of them for agreeing to be my seconds!And that's where I am, fussy that I am having to learn to cope with being ill, but happy that I finally will have help, and a very defined line of what I am and am not responsible for at the show. It is going to be a major learning experience for me, but I look forward to seeing where the next year takes me with all of these changes.
